TODOS POR LOLO

Meet Lorenzo (a.k.a Lolo). Lolo is a boy from Rio Cuarto, Cordoba, Argentina who needs a gene therapy treatment that stops the advance of the degenerative genetic disease Spinal Muscular Atrophy (SMA) with which he was diagnosed last year.

His mother and father, Luciana and Franco, cannot afford this very expensive treatment, and time is running out; it is critical that Lolo receive this in his first two years of life. “The importance of this drug, as it is a degenerative disease, is to slow down the progression of the disease, it would give Lolo the possibility of holding his head, sitting without support, greater mobility in his little hands, and it would open a world of possibilities to communicate, connect and of greater autonomy,” Lolo’s dad assured.

That’s where we come in. Please help us #LIFTOTHERS and raise as much money we can to pay for his treatment through the #todosporlolo campaign, and give Lolo a better chance to fight this rare disease.


Conoce a Lorenzo (también conocido como Lolo). Lolo es un niño de Río Cuarto, Córdoba, Argentina que necesita un tratamiento de terapia génica que frene el avance de la enfermedad genética degenerativa Atrofia Muscular Espinal (AME) que le diagnosticaron el año pasado.

Su madre y su padre, Luciana y Franco, no pueden pagar este costoso tratamiento y el tiempo se acaba. Es fundamental que Lolo reciba esto en sus primeros dos años de vida. “La importancia de este fármaco, por ser una enfermedad degenerativa, es frenar la progresión de la enfermedad, le daría a Lolo la posibilidad de sostener la cabeza, sentarse sin apoyo, mayor movilidad en sus manitos, y se le abrirían un mundo de posibilidades para comunicarse, conectar y de mayor autonomía ”, aseguró el papá de Lolo.

Ahí es donde entramos nosotros. Ayúdenos a #LIFTOTHERS y recaudemos todo el dinero que podamos para pagar su tratamiento a través de la campaña #todosporlolo, y démosle a Lolo una mejor oportunidad de luchar contra esta rara enfermedad.

Category:

Description

Meet Lorenzo (a.k.a Lolo). Lolo is a boy from Rio Cuarto, Cordoba, Argentina who needs a gene therapy treatment that stops the advance of the degenerative genetic disease Spinal Muscular Atrophy (SMA) with which he was diagnosed last year.

His mother and father, Luciana and Franco, cannot afford this very expensive treatment, and time is running out; it is critical that Lolo receive this in his first two years of life. “The importance of this drug, as it is a degenerative disease, is to slow down the progression of the disease, it would give Lolo the possibility of holding his head, sitting without support, greater mobility in his little hands, and it would open a world of possibilities to communicate, connect and of greater autonomy,” Lolo’s dad assured.

That’s where we come in. Please help us #LIFTOTHERS and raise as much money we can to pay for his treatment through the #todosporlolo campaign, and give Lolo a better chance to fight this rare disease.




Conoce a Lorenzo (también conocido como Lolo). Lolo es un niño de Río Cuarto, Córdoba, Argentina que necesita un tratamiento de terapia génica que frene el avance de la enfermedad genética degenerativa Atrofia Muscular Espinal (AME) que le diagnosticaron el año pasado.

Su madre y su padre, Luciana y Franco, no pueden pagar este costoso tratamiento y el tiempo se acaba. Es fundamental que Lolo reciba esto en sus primeros dos años de vida. “La importancia de este fármaco, por ser una enfermedad degenerativa, es frenar la progresión de la enfermedad, le daría a Lolo la posibilidad de sostener la cabeza, sentarse sin apoyo, mayor movilidad en sus manitos, y se le abrirían un mundo de posibilidades para comunicarse, conectar y de mayor autonomía ”, aseguró el papá de Lolo.

Ahí es donde entramos nosotros. Ayúdenos a #LIFTOTHERS y recaudemos todo el dinero que podamos para pagar su tratamiento a través de la campaña #todosporlolo, y démosle a Lolo una mejor oportunidad de luchar contra esta rara enfermedad.


LIFT Sports Foundation is a GA nonprofit corporation operating through a fiscal sponsorship with Players Philanthropy Fund (Federal Tax ID: 27-6601178), a Maryland charitable trust with federal tax-exempt status as a public charity under Section 501(c)(3) of the Internal Revenue Code. Contributions to LIFT Sports Foundation are tax-deductible to the fullest extent of the law.

Reviews

There are no reviews yet.

Be the first to review “TODOS POR LOLO”

Your email address will not be published.